Insight: Do people with dementia realize they have it?

Somebody asked me this question above.

Let’s explore the complexity together.
It’s a profound and challenging question: do people with dementia ever realize they have it? The answer depends on the individual and the stage of the disease. In the early stages, many are aware of memory lapses or confusion and may even voice their concerns. But as the disease progresses, this awareness often fades, leaving them living in fragmented realities.

In the Journey of my Job , once had a patient, who, in the early stages of his dementia, would joke with me, saying, “I think my brain’s playing hide and seek!” He was acutely aware of his memory issues and was deeply frustrated. Over time, as his awareness faded, he seemed more at ease, as if his mind had let go of the fight. It reminded me of the importance of patience and meeting people where they are in their journey.

How Can We Support Them?

Empathy is Key: If your loved one knows their mind is changing, listen without judgment or dismissiveness. Acknowledge their fears, and reassure them with unconditional love.
Redirect, Don’t Correct: If confusion arises, focus on positive reinforcement rather than pointing out mistakes. It helps maintain dignity and reduces stress.
Learn from Leaders:
Stories like Joe Biden’s remind us that adapting, connecting with others, and embracing vulnerability are ways to cope with cognitive change—whether mild or severe.

Caregiving Tips
As caregivers, find solace in support groups and moments of clarity with your loved one. Remember, dementia does not erase the essence of a person; it only shifts how we connect. When awareness is present, like in Biden’s candid approach to his public and personal struggles, use it as an opportunity for deeper connections.
Dementia may cloud the mind, but it cannot dim the light of love and resilience. Stay present, focus on the human connection, and cherish every memory, no matter how fleeting.